SUSTAINS stands for Support USers To Access INformation and Services. SUSTAINS was a European project that was supposed to introduce secure online access to health data for Europeans.
The local project at OUH aspired to strengthen the dialogue between the patient and hospital, for example by providing the patient with the possibility of adding data to the electronic patient journal Cosmic.
The patients were to access their data through sundhed.dk, and the clinicians were able to view data directly in the patient journal Cosmic.
During the fall of 2014, Cosmic version 7.5 was to be installed in the Region of Southern Denmark. This is the same version that is being used in County Council of Uppsala, and because of this, we were able to use one of the solutions developed for Cosmic in relation to Uppsala’s participation in SUSTAINS. The function included the possibility for patients to comment on their private journal, update basic information in the patient care and complete a questionnaire prior to the consultation. The solution was never implemented, but the thoughts are continued in the PRO project.